Improving the justice-based argument for conducting human gene editing research to cure sickle cell disease

In a recent article, Marilyn Baffoe-Bonnie offers three arguments that conducting CRISPR/Cas9 biotechnology research to cure sickle cell disease (SCD) would help address historical and current injustices in SCD research and care. I will grant that the first argument is sound, but show that the secon...

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Bibliographic Details
Published in:Bioethics
Main Author: Chan, Berman (Author)
Contributors: Baffoe-Bonnie, Marilyn S. (Bibliographic antecedent)
Format: Electronic Article
Language:English
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Published: Wiley-Blackwell [2020]
In: Bioethics
IxTheo Classification:NCH Medical ethics
NCJ Ethics of science
Further subjects:B CRISPR
B Biotechnology
B Distributive Justice
B Gene Therapy
B Sickle cell disease
B benefit-sharing
Online Access: Presumably Free Access
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Summary:In a recent article, Marilyn Baffoe-Bonnie offers three arguments that conducting CRISPR/Cas9 biotechnology research to cure sickle cell disease (SCD) would help address historical and current injustices in SCD research and care. I will grant that the first argument is sound, but show that the second and third arguments suffer from roughly the same defect, which is that they really argue for something else rather than for conducting CRISPR/Cas9 research to cure SCD. I conclude that a better justice-based argument would use only Baffoe-Bonnie’s first argument.
ISSN:1467-8519
Reference:Kritik von "A justice-based argument for including sickle cell disease in CRISPR/Cas9 clinical research (2019)"
Contains:Enthalten in: Bioethics
Persistent identifiers:DOI: 10.1111/bioe.12690