Truth-telling to the seriously ill child – Nurses’ experiences, attitudes, and beliefs

BackgroundNurses play an integral role in the care of children hospitalised with a serious illness. Although information about diagnostics, treatments, and prognosis are generally conveyed to parents and caregivers of seriously ill children by physicians, nurses spend a significant amount of time at...

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Bibliographic Details
Authors: El Ali, Mandy (Author) ; Licqurish, Sharon (Author) ; O'Neill, Jenny (Author) ; Gillam, Lynn (Author)
Format: Electronic Article
Language:English
Check availability: HBZ Gateway
Interlibrary Loan:Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany)
Published: 2024
In: Nursing ethics
Year: 2024, Volume: 31, Issue: 5, Pages: 930-950
Further subjects:B topic areas
B philosophical perspectives / theory
B empirical approaches
B care ethics / ethics of care
B Disclosure
B ethics and children in care
B Lying
B Literature Review
B Truth-telling
B Adolescent
B ethical challenges
B clinical ethics
B Nurse
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Summary:BackgroundNurses play an integral role in the care of children hospitalised with a serious illness. Although information about diagnostics, treatments, and prognosis are generally conveyed to parents and caregivers of seriously ill children by physicians, nurses spend a significant amount of time at the child’s bedside and have an acknowledged role in helping patients and families understand the information that they have been given by a doctor. Hence, the ethical role of the nurse in truth disclosure to children is worth exploring.MethodsA systematic academic database and grey literature search strategy was conducted using CINAHL, Medline Psych Info, and Google Scholar. Keywords used included truth, children, nurse, disclosure, serious illness, and communication. A total of 17 publications of varying types were included in the final data set.Ethical ConsiderationsAs this was a review of the literature, there were no direct human participants. Empirical studies included in the review had received ethics approval.ResultsOf the 17 articles included in the review, only one directly reported on the experiences of nurses asked to withhold the truth from patients. Empirical studies were limited to HIV-positive children and children diagnosed with cancer and the dying child.ConclusionA paucity of literature exploring the experiences, attitudes, and beliefs of nurses with regard to truth-telling to seriously ill children is evident. Little consideration has been given to the role nurses play in communicating medical information to children in a hospital setting. The 17 articles included in the review focused on cancer, and HIV, diagnosis, and end-of-life care. Further research should be undertaken to explore the experiences and attitudes of nurses to clinical information sharing to children hospitalised with a wide range of serious illnesses and in diverse clinical scenarios.
ISSN:1477-0989
Contains:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/09697330231215952