Experiences of dialogue in advance care planning educational programs

BackgroundAdvance care planning (ACP) is a process in which adults engage in an ongoing dialogue about future medical treatment and care. Though ACP is recommended to improve the quality of end-of-life care, the details of the dialogue experience in ACP are unknown.ObjectiveTo explore participants’...

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Authors: Kato, Hiroki (Author) ; Iwasaki, Takako (Author) ; Ko, Ayako (Author) ; Nishina, Yuko (Author) ; Tanigaki, Shizuko (Author) ; Norikoshi, Chie (Author) ; Sakai, Masako (Author) ; Ito, Mari (Author) ; Harasawa, Nozomi (Author) ; Tamura, Keiko (Author) ; Nagae, Hiroko (Author)
Format: Electronic Article
Language:English
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Published: Sage 2024
In: Nursing ethics
Year: 2024, Volume: 31, Issue: 4, Pages: 493-507
Further subjects:B Focus Group
B Advance Care Planning
B Dialogue
B qualitative design
B Value
B education program
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Summary:BackgroundAdvance care planning (ACP) is a process in which adults engage in an ongoing dialogue about future medical treatment and care. Though ACP is recommended to improve the quality of end-of-life care, the details of the dialogue experience in ACP are unknown.ObjectiveTo explore participants’ experiences of dialogue in an ACP educational program that encouraged them to discuss the value of a way of life.Research designThis qualitative descriptive study used the focus group interview method. Data were analyzed using qualitative content analysis.Participants and research contextA dialogue-based ACP educational program was conducted in four regions in Japan for local citizens to discuss the value of their way of life. A total of 66 individuals (mean age = 55.5 ± 17.2 years; 50 women and 16 men) participated in focus group interviews.Ethical considerationsThis study was approved by the Ethical Review Committee of Tokyo Women’s Medical University (no. 4723) and Kyoto University (no. R2099).FindingsFive main themes were extracted: discussing one’s thoughts with others in a considerate manner, reflecting on one’s way of life through others, feeling a sense of connection with others through storytelling, realizing the difficulties of talking about “what if” topics, and turning one’s eyes toward the future through the dialogue. These themes were interrelated and illustrated the complexity of the experience of discussing values.ConclusionsThe results suggest that dialogue in ACP is useful in clarifying values. They also indicated the need for dealing with the ethical challenges of discussing value and the importance of caring for the interlocutor to have a safe dialogue. In the ACP process, safety in dialogue may improve readiness in ACP, and health practitioners who support ACP need to address the ethical challenges entailing dialogue about values.
ISSN:1477-0989
Contains:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/09697330231166086