Identity Theft, Deep Brain Stimulation, and the Primacy of Post-trial Obligations

Patient narratives from two investigational deep brain stimulation trials for traumatic brain injury and obsessive-compulsive disorder reveal that injury and illness rob individuals of personal identity and that neuromodulation can restore it. The early success of these interventions makes a compell...

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Bibliographic Details
Published in:The Hastings Center report
Authors: Fins, Joseph J. (Author) ; Merner, Amanda R. (Author) ; Wright, Megan S. (Author) ; Lázaro-Muñoz, Gabriel (Author)
Format: Electronic Article
Language:English
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Published: Wiley 2024
In: The Hastings Center report
Year: 2024, Volume: 54, Issue: 1, Pages: 34-41
Further subjects:B Traumatic Brain Injury
B obsessive-compulsive disorder
B disability rights
B Identity Theft
B research ethics
B deep brain stimulation
B Personal Identity
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Summary:Patient narratives from two investigational deep brain stimulation trials for traumatic brain injury and obsessive-compulsive disorder reveal that injury and illness rob individuals of personal identity and that neuromodulation can restore it. The early success of these interventions makes a compelling case for continued post-trial access to these technologies. Given the centrality of personal identity to respect for persons, a failure to provide continued access can be understood to represent a metaphorical identity theft. Such a loss recapitulates the pain of an individual's initial injury or illness and becomes especially tragic because it could be prevented by robust policy. A failure to fulfill this normative obligation constitutes a breach of disability law, which would view post-trial access as a means to achieve social reintegration through this neurotechnological accommodation.
ISSN:1552-146X
Contains:Enthalten in: Hastings Center, The Hastings Center report
Persistent identifiers:DOI: 10.1002/hast.1567