Selling Health Data: De-Identification, Privacy, and Speech

Two court cases that involve selling prescription data for pharmaceutical marketing affect biomedical informatics, patient and clinician privacy, and regulation. Sorrell v. IMS Health Inc. et al. in the United States and R v. Department of Health, Ex Parte Source Informatics Ltd. in the United Kingd...

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Bibliographic Details
Published in:Cambridge quarterly of healthcare ethics
Main Author: Kaplan, Bonnie (Author)
Format: Electronic Article
Language:English
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Published: Cambridge Univ. Press 2015
In: Cambridge quarterly of healthcare ethics
Further subjects:B Ex Parte Source Informatics Ltd
B pharmaceutical marketing
B health records
B R v. Department of Health
B de-identification
B Data mining
B Sorrell v. IMS Health Inc
B health data privacy
B health data sale
B Mass data
B Confidentiality
B EU Data Protection Directive
B HIPPA
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Summary:Two court cases that involve selling prescription data for pharmaceutical marketing affect biomedical informatics, patient and clinician privacy, and regulation. Sorrell v. IMS Health Inc. et al. in the United States and R v. Department of Health, Ex Parte Source Informatics Ltd. in the United Kingdom concern privacy and health data protection, data de-identification and reidentification, drug detailing (marketing), commercial benefit from the required disclosure of personal information, clinician privacy and the duty of confidentiality, beneficial and unsavory uses of health data, regulating health technologies, and considering data as speech. Individuals should, at the very least, be aware of how data about them are collected and used. Taking account of how those data are used is needed so societal norms and law evolve ethically as new technologies affect health data privacy and protection.
ISSN:1469-2147
Contains:Enthalten in: Cambridge quarterly of healthcare ethics
Persistent identifiers:DOI: 10.1017/S0963180114000589