The Right to Withdraw from Research

The right to withdraw from participation in research is recognized in virtually all national and international guidelines for research on human subjects. It is therefore surprising that there has been little justification for that right in the literature. We argue that the right to withdraw should p...

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Bibliographic Details
Authors: Schaefer, G. Owen (Author) ; Wertheimer, Alan (Author)
Format: Electronic Article
Language:English
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Published: Johns Hopkins Univ. Press 2010
In: Kennedy Institute of Ethics journal
Year: 2010, Volume: 20, Issue: 4, Pages: 329-352
Online Access: Volltext (lizenzpflichtig)
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Summary:The right to withdraw from participation in research is recognized in virtually all national and international guidelines for research on human subjects. It is therefore surprising that there has been little justification for that right in the literature. We argue that the right to withdraw should protect research participants from information imbalance, inability to hedge, inherent uncertainty, and untoward bodily invasion, and it serves to bolster public trust in the research enterprise. Although this argument is not radical, it provides a useful way to determine how the right should be applied in various cases.
ISSN:1086-3249
Contains:Enthalten in: Kennedy Institute of Ethics, Kennedy Institute of Ethics journal