Procedural Misconceptions and Informed Consent: Insights from Empirical Research on the Clinical Trials Industry

, This paper provides a simultaneously reflexive and analytical framework to think about obstacles to truly informed consent in social science and biomedical research. To do so, it argues that informed consent often goes awry due to procedural misconceptions built into the research context. The conc...

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Bibliographic Details
Main Author: Fisher, Jill A (Author)
Format: Electronic Article
Language:English
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Published: Johns Hopkins Univ. Press 2006
In: Kennedy Institute of Ethics journal
Year: 2006, Volume: 16, Issue: 3, Pages: 251-268
Online Access: Presumably Free Access
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Summary:, This paper provides a simultaneously reflexive and analytical framework to think about obstacles to truly informed consent in social science and biomedical research. To do so, it argues that informed consent often goes awry due to procedural misconceptions built into the research context. The concept of procedural misconception is introduced to describe how individuals respond to what is familiar in research settings and overlook what is different. In the context of biomedical research, procedural misconceptions can be seen to function as root causes of therapeutic misconceptions.
ISSN:1086-3249
Contains:Enthalten in: Kennedy Institute of Ethics, Kennedy Institute of Ethics journal
Persistent identifiers:DOI: 10.1353/ken.2006.0018