A Holy Mess of a Story: Maternal Reflections on Caregiving, Chaos, and Intellectual Disability
Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experien...
| Main Author: | |
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| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
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| Interlibrary Loan: | Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany) |
| Published: |
2023
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| In: |
Journal of disability & religion
Year: 2023, Volume: 27, Issue: 1, Pages: 124-137 |
| Further subjects: | B
parent
B Suffering B L’Arche B intellectual disability |
| Online Access: |
Volltext (lizenzpflichtig) |
| Summary: | Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experiences of mothers caring for children with intellectual disabilities, particularly among faith communities. Rather than a journey of spiritual growth, research indicates that the lives of mothers often resemble a chaos narrative of spiritual confusion, paradoxically fused with joy. Providing effective spiritual care requires that faith communities honor anti-narratives of caregiving chaos. |
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| ISSN: | 2331-253X |
| Contains: | Enthalten in: Journal of disability & religion
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| Persistent identifiers: | DOI: 10.1080/23312521.2021.1932688 |