Obtaining informed consent: observations from community research with refugee and impoverished youth

This paper presents challenges facing researchers in applying basic ethical principles while conducting research with youth in a developing country context. A discussion of the cultural and social challenges to adherence to the elements of informed consent: disclosure, comprehension, capacity, volun...

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Bibliographic Details
Authors: Nakkash, R. (Author) ; Makhoul, J. (Author) ; Afifi, R. (Author)
Format: Electronic Article
Language:English
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Published: BMJ Publ. 2009
In: Journal of medical ethics
Year: 2009, Volume: 35, Issue: 10, Pages: 638-643
Online Access: Volltext (JSTOR)
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Summary:This paper presents challenges facing researchers in applying basic ethical principles while conducting research with youth in a developing country context. A discussion of the cultural and social challenges to adherence to the elements of informed consent: disclosure, comprehension, capacity, voluntariness and consent is presented. The authors argue that the current institutional review board requirements that guide research reflect values and stem from western contexts that may not be fully applicable to non-western contexts. More dialogue is needed among researchers in developing world contexts on challenges of and possible revisions to requirements that maintain respect for persons, beneficence, autonomy and justice, particularly when working with youth.
ISSN:1473-4257
Contains:Enthalten in: Journal of medical ethics
Persistent identifiers:DOI: 10.1136/jme.2008.028936