Ethical dilemmas: feeding back results to members of a longitudinal cohort study

Does feedback of abnormal results affect validity during a longitudinal study? A fundamental requirement of research is that no harm should come to the participants; however, being granted ethical approval for research does not imply that individuals will necessarily benefit from participation. Cert...

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Bibliographic Details
Authors: Jeffery, A. (Author) ; Snaith, R. (Author) ; Voss, L. (Author)
Format: Electronic Article
Language:English
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Published: BMJ Publ. 2005
In: Journal of medical ethics
Year: 2005, Volume: 31, Issue: 3, Pages: 153
Online Access: Volltext (JSTOR)
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Summary:Does feedback of abnormal results affect validity during a longitudinal study? A fundamental requirement of research is that no harm should come to the participants; however, being granted ethical approval for research does not imply that individuals will necessarily benefit from participation. Certain ethical dilemmas become apparent only during the course of a longitudinal cohort study, such as the EarlyBird diabetes study in Plymouth, Devon.1 In this non-intervention study, the aim is to observe children for 12 years, monitoring for early signs of insulin resistance. A substantial volume of data is gathered every 6 months on the children and their parents, relating to lifestyle and indices of metabolic health. …
ISSN:1473-4257
Contains:Enthalten in: Journal of medical ethics
Persistent identifiers:DOI: 10.1136/jme.2004.010140