Pour une éthique de la santé digitale adaptée aux soins des personnes handicapées
Pour comprendre les enjeux de la santé digitale chez les personnes handicapés notre réflexion analyse successivement l’évolution de la santé digitale en France au cours des 15 dernières années, le contexte du handicap puis nous ciblons les enjeux sur les aspects cliniques et technologiques. Notre ré...
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| Format: | Electronic Article |
| Language: | French |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
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| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Published: |
Éditions ESKA
2021
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| In: |
Journal international de bioéthique et d'éthique des sciences
Year: 2021, Volume: 32, Issue: 4, Pages: 45-71 |
| IxTheo Classification: | KBG France NCH Medical ethics NCJ Ethics of science TK Recent history ZG Media studies; Digital media; Communication studies |
| Further subjects: | B
Telemedicine
B Handicapé B Télémédecine B Disabled |
| Online Access: |
Volltext (lizenzpflichtig) Volltext (lizenzpflichtig) |
| Summary: | Pour comprendre les enjeux de la santé digitale chez les personnes handicapés notre réflexion analyse successivement l’évolution de la santé digitale en France au cours des 15 dernières années, le contexte du handicap puis nous ciblons les enjeux sur les aspects cliniques et technologiques. Notre référence est l’habitat inclusif qui permet l’accueil d’handicapés dans un établissement adapté aux soins et surtout à la vie quotidienne. Nous analysons le profil des candidats admis et non admis dans la structure pour identifier des recommandations de bonnes pratiques cliniques et technologiques qui puissent s’impliquer dans l’habitat inclusif et au-delà dans des MAS ou FAM pour la gestion des patients. En 2022 le projet MES mon espace de santé doit se déployer et nous proposons des recommandations susceptibles de faciliter l’accès aux soins dans des conditions éthiques légitimes. The objective of this article is to identify ethical recommendations for the deployment of Digital Health in the field of disability. The description of the pioneer years of telemedicine is completed by some figures on disability in France to identify the general context that presides over the foreseeable deployment in the coming years. This deployment is accelerating, boosted by the COVID 19 pandemic, taking into account all the potential of digital technology. In this context, disability has been the poor relation for many years, characterized by numerous obstacles in access to care, as pointed out by multiple reports. The pragmatic response that we suggest at the territorial level involves first of all identifying the needs of disabled people. The analysis will be centered on a population of 57 candidates for admission to a shared housing facility known as inclusive by the Simon de Cyrène association in Rungis. 53% of the candidates were admitted, their profile is described, and we suggest integrating digital tools into the organization of care by taking into account the specificity of the needs and the context of the facility. This framework gives the opportunity to propose ethical recommendations. Candidates who are not admitted must also have access to care, whether they reside in specialized homes, hostels or hospital services. From an ethical perspective, we must ensure that we provide equitable access to care. In practice, the analysis carried out in this study shows the interest of having and applying in Digital Health a charter between the applicants and the required, pivotal or proximity hospital, in the respect of fair care for a population whose deficit of access to care has been widely noted. Ethical recommendations are a key point in this context. |
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| ISSN: | 2608-1008 |
| Contains: | Enthalten in: Journal international de bioéthique et d'éthique des sciences
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| Persistent identifiers: | DOI: 10.3917/jibes.324.0045 |