Researching lived experience in health care: Significance for care ethics

The aim of this article is to demonstrate the usefulness of qualitative research for studying the ethics of care, bringing to light the lived experience of health care recipients, together with the importance of methods that allow reconstruction of the processes underlying this lived experience. Liv...

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Authors: Dierckx de Casterlé, Bernadette (Author) ; Verhaeghe, Sofie TL (Author) ; Kars, Marijke C (Author) ; Coolbrandt, Annemarie (Author) ; Stevens, Marleen (Author) ; Stubbe, Maaike (Author) ; Deweirdt, Nathalie (Author) ; Vincke, Jeroen (Author) ; Grypdonck, Maria (Author)
Format: Electronic Article
Language:English
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Published: Sage 2011
In: Nursing ethics
Year: 2011, Volume: 18, Issue: 2, Pages: 232-242
Further subjects:B Stem Cell Transplantation
B empirical ethics
B Care Ethics
B lived experiences
B Qualitative Research
B Organ Donation
Online Access: Volltext (lizenzpflichtig)
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Summary:The aim of this article is to demonstrate the usefulness of qualitative research for studying the ethics of care, bringing to light the lived experience of health care recipients, together with the importance of methods that allow reconstruction of the processes underlying this lived experience. Lived experiences of families being approached for organ donation, parents facing the imminent death of their child and patients being treated using stem cell transplantation are used to illustrate how ethical principles are differentiated, modified or contradicted by the narrative context of persons concerned. The integration of empirical data into ethics will help caregivers in their ethical decision making and may enrich care ethics as a narrative and interpretative field.
ISSN:1477-0989
Contains:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/0969733010389253