Bridging the Challenges: The Effects of FOP on the Family
A personal account of family life with a disabled child. The author describes her experience of the grief process following diagnosis, the particular challenges associated with the rare orthopaedic condition, fibrodysplasia ossificans progressiva (FOP), and the effects on the family when one member...
| Main Author: | |
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| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
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| Interlibrary Loan: | Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany) |
| Published: |
2000
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| In: |
Journal of religion, disability & health
Year: 2000, Volume: 3, Issue: 3, Pages: 5-23 |
| Further subjects: | B
orthopaedic
B Sarah B FOP B Family B Bone B Coping B Craniopharyngioma |
| Online Access: |
Volltext (lizenzpflichtig) |
| Summary: | A personal account of family life with a disabled child. The author describes her experience of the grief process following diagnosis, the particular challenges associated with the rare orthopaedic condition, fibrodysplasia ossificans progressiva (FOP), and the effects on the family when one member has extensive needs. She speaks to the value of a support group and summarizes with a list of ten things she has learned as the mother of a disabled child. |
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| ISSN: | 1522-9122 |
| Contains: | Enthalten in: Journal of religion, disability & health
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| Persistent identifiers: | DOI: 10.1300/J095v03n03_02 |