Navigating conflicts of justice in the use of race and ethnicity in precision medicine

Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scien...

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Authors: Schaefer, G. Owen (Author) ; Sun, Shirley Hsiao-Li (Author) ; Tai, E. Shyong (Author)
Format: Electronic Article
Language:English
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Published: Wiley-Blackwell [2020]
In: Bioethics
Year: 2020, Volume: 34, Issue: 8, Pages: 849-856
IxTheo Classification:NCC Social ethics
NCH Medical ethics
Further subjects:B Social Justice
B Distributive Justice
B precision medicine
B human rights justice
Online Access: Presumably Free Access
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Summary:Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scientific value or privacy, there are also tensions between different aspects of justice. This paper focuses on three particular aspects of justice relevant to this precision medicine: social justice, distributive justice and human rights. We describe the implications of each for the use of race and ethnicity in precision medicine, and also how they intersect and potentially conflict with each another. By attending to these intersections, we aim to enrich and add nuance to debates over how best to proceed with precision medicine initiatives.
ISSN:1467-8519
Reference:Errata "Erratum (2020)"
Contains:Enthalten in: Bioethics
Persistent identifiers:DOI: 10.1111/bioe.12757