Adjusting the focus: A public health ethics approach to data research
This paper contends that a research ethics approach to the regulation of health data research is unhelpful in the era of population-level research and big data because it results in a primary focus on consent (meta-, broad, dynamic and/or specific consent). Two recent guidelines - the 2016 WMA Decla...
Main Author: | |
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Format: | Electronic Article |
Language: | English |
Check availability: | HBZ Gateway |
Journals Online & Print: | |
Fernleihe: | Fernleihe für die Fachinformationsdienste |
Published: |
Wiley-Blackwell
[2019]
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In: |
Bioethics
Year: 2019, Volume: 33, Issue: 3, Pages: 357-366 |
IxTheo Classification: | NCH Medical ethics NCJ Ethics of science |
Further subjects: | B
Informed Consent
B social value B Health Information B Public Health Ethics B Data B research ethics B CIOMS |
Online Access: |
Volltext (Verlag) Volltext (doi) |