The role of data custodians in establishing and maintaining social licence for health research

In this article we explore the role of data custodians in establishing and maintaining social licence for the use of personal information in health research. Personal information from population-level data collections can be used to make significant contributions to health and medical research, but...

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Bibliographic Details
Authors: Allen, Judy (Author) ; Adams, Carolyn (Author) ; Flack, Felicity (Author)
Format: Electronic Article
Language:English
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Published: Wiley-Blackwell [2019]
In: Bioethics
Year: 2019, Volume: 33, Issue: 4, Pages: 502-510
IxTheo Classification:NCC Social ethics
NCH Medical ethics
Further subjects:B social licence
B Mass data
B non-exploitation
B Reciprocity
B Public Good
B data custodian
Online Access: Volltext (Verlag)
Volltext (doi)