RT Article
T1 People with Aphasia Shape Spirituality Research: Unlocking Insights into Access and Acceptability
JF Journal of disability & religion
VO 29
IS 4
SP 386
OP 414
A1 Mumby, Katharyn
LA English
YR 2025
UL https://ixtheo.de/Record/1937711331
AB Underrepresented in research coproduction, and in spirituality research, people with aphasia partnered with the author in action research incorporating communication access techniques. They became a coproduction steering group for a study into assessing and supporting spiritual health in aphasia. The Steering group were embedded at multiple levels in the research process, likened to negotiating locks on a canal. The coproduction evidenced how published standards could be met when including people with communication disability. The process shaped the WELLHEAD Toolkit (for spiritual health assessment and support – the product) in its feasibility study, thus ensuring accessibility and acceptability from a range of spiritual and religious viewpoints. Co-creation (product and process) was valued, with impact upon spirituality of those participating as their perceptions were unlocked. Further work is exploring how far others’ perceptions of their spirituality may be unlocked using the WELLHEAD Toolkit techniques, including applications beyond speech and language therapy and communication disability, to support holistic rehabilitation and wellbeing.
K1 communication support
K1 communication access
K1 Holistic
K1 Inclusion
K1 coproduction
K1 Spirituality
K1 Aphasia
DO 10.1080/23312521.2025.2457773