Families’ Experiences with Newborn Screening: A Critical Source of Evidence
Debates about expanding newborn screening with whole genome sequencing are fueled by data about public perception, public opinion, and the positions taken by public advocates and advocacy groups. One form of evidence that merits attention as we consider possible uses of whole-genome sequencing durin...
| Auteurs: | ; ; |
|---|---|
| Type de support: | Électronique Article |
| Langue: | Anglais |
| Vérifier la disponibilité: | HBZ Gateway |
| Interlibrary Loan: | Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany) |
| Publié: |
2018
|
| Dans: |
The Hastings Center report
Année: 2018, Volume: 48, Pages: 29-31 |
| Accès en ligne: |
Volltext (kostenfrei) Volltext (kostenfrei) |