Families’ Experiences with Newborn Screening: A Critical Source of Evidence

Debates about expanding newborn screening with whole genome sequencing are fueled by data about public perception, public opinion, and the positions taken by public advocates and advocacy groups. One form of evidence that merits attention as we consider possible uses of whole-genome sequencing durin...

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Détails bibliographiques
Auteurs: Grob, Rachel (Auteur) ; Roberts, Scott (Auteur) ; Timmermans, Stefan (Auteur)
Type de support: Électronique Article
Langue:Anglais
Vérifier la disponibilité: HBZ Gateway
Interlibrary Loan:Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany)
Publié: 2018
Dans: The Hastings Center report
Année: 2018, Volume: 48, Pages: 29-31
Accès en ligne: Volltext (kostenfrei)
Volltext (kostenfrei)