Nothing about Us without Us in Precision Medicine: A Call to Reframe Disability Difference in Genetics and Genomics
Sixty-one million Americans and approximately a billion people worldwide live with some form of disability that limits one or more major life activities. The field of precision medicine continues to grapple with how to best serve disability communities. In this paper, we suggest that precision medic...
| Authors: | ; ; |
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| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Interlibrary Loan: | Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany) |
| Published: |
2024
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| In: |
The Hastings Center report
Year: 2024, Volume: 54, Pages: S41-S48 |
| Further subjects: | B
community-engaged research in genetics and genomics
B recognition justice B Distributive Justice B mere difference view of disability B People with disabilities B research ethics |
| Online Access: |
Volltext (kostenfrei) Volltext (kostenfrei) |
