Human Biobanking in Developed and Developing Countries: An Ethico-Legal Comparative Analysis of the Frameworks in the United Kingdom, Australia, Uganda, and South Africa
Although the concept of biobanking is not new, the open and evolving nature of biobanks has created profound ethical, legal, and social implications, including issues around informed consent, community engagement, secondary uses of materials over time, ownership of materials, data sharing, and priva...
Main Author: | |
---|---|
Format: | Electronic Article |
Language: | English |
Check availability: | HBZ Gateway |
Journals Online & Print: | |
Fernleihe: | Fernleihe für die Fachinformationsdienste |
Published: |
Cambridge Univ. Press
2021
|
In: |
Cambridge quarterly of healthcare ethics
Year: 2021, Volume: 30, Issue: 1, Pages: 146-160 |
Further subjects: | B
Informed Consent
B Privacy B Ownership B human biobanking B broad consent B Community engagement B developing and developed countries B ethico-legal framework B secondary uses of materials |
Online Access: |
Volltext (lizenzpflichtig) Volltext (lizenzpflichtig) |
MARC
LEADER | 00000naa a22000002 4500 | ||
---|---|---|---|
001 | 1827979186 | ||
003 | DE-627 | ||
005 | 20221220052650.0 | ||
007 | cr uuu---uuuuu | ||
008 | 221220s2021 xx |||||o 00| ||eng c | ||
024 | 7 | |a 10.1017/S0963180120000614 |2 doi | |
035 | |a (DE-627)1827979186 | ||
035 | |a (DE-599)KXP1827979186 | ||
040 | |a DE-627 |b ger |c DE-627 |e rda | ||
041 | |a eng | ||
084 | |a 1 |2 ssgn | ||
100 | 1 | |a Mahomed, Safia |e VerfasserIn |4 aut | |
245 | 1 | 0 | |a Human Biobanking in Developed and Developing Countries: An Ethico-Legal Comparative Analysis of the Frameworks in the United Kingdom, Australia, Uganda, and South Africa |
264 | 1 | |c 2021 | |
336 | |a Text |b txt |2 rdacontent | ||
337 | |a Computermedien |b c |2 rdamedia | ||
338 | |a Online-Ressource |b cr |2 rdacarrier | ||
520 | |a Although the concept of biobanking is not new, the open and evolving nature of biobanks has created profound ethical, legal, and social implications, including issues around informed consent, community engagement, secondary uses of materials over time, ownership of materials, data sharing, and privacy. Complexities also emerge because of increasing international collaborations and differing national positions. In addition, the degrees and topics of concern vary as legislative, ethical, and social frameworks differ across developed and developing countries. Implementing national laws in an internationally consistent manner is also problematic. However, these concerns should not cause countries, especially developing countries, to lag behind as this novel wave of research gains momentum, particularly while several biobank initiatives are already underway in the developing world. As the law has always struggled to keep up with the fast-evolving scientific arena, this article seeks to identify the ethico-legal frameworks in place in the United Kingdom, Australia, Uganda, and South Africa, for human biobank research, in an attempt to compare and contextualize the approaches to human biobanking in specific developed and developing countries. | ||
601 | |a Biobank | ||
650 | 4 | |a ethico-legal framework | |
650 | 4 | |a broad consent | |
650 | 4 | |a Informed Consent | |
650 | 4 | |a Community engagement | |
650 | 4 | |a Privacy | |
650 | 4 | |a Ownership | |
650 | 4 | |a secondary uses of materials | |
650 | 4 | |a developing and developed countries | |
650 | 4 | |a human biobanking | |
773 | 0 | 8 | |i Enthalten in |t Cambridge quarterly of healthcare ethics |d Cambridge : Cambridge Univ. Press, 1992 |g 30(2021), 1, Seite 146-160 |h Online-Ressource |w (DE-627)306655039 |w (DE-600)1499985-7 |w (DE-576)081985010 |x 1469-2147 |7 nnns |
773 | 1 | 8 | |g volume:30 |g year:2021 |g number:1 |g pages:146-160 |
856 | 4 | 0 | |u https://doi.org/10.1017/S0963180120000614 |x Resolving-System |z lizenzpflichtig |3 Volltext |
856 | 4 | 0 | |u https://www.cambridge.org/core/journals/cambridge-quarterly-of-healthcare-ethics/article/human-biobanking-in-developed-and-developing-countries-an-ethicolegal-comparative-analysis-of-the-frameworks-in-the-united-kingdom-australia-uganda-and-south-africa/482807C211306239176A8A8F72400EFF |x Verlag |z lizenzpflichtig |3 Volltext |
935 | |a mteo | ||
951 | |a AR | ||
ELC | |a 1 | ||
ITA | |a 1 |t 1 | ||
LOK | |0 000 xxxxxcx a22 zn 4500 | ||
LOK | |0 001 4235384090 | ||
LOK | |0 003 DE-627 | ||
LOK | |0 004 1827979186 | ||
LOK | |0 005 20221220052650 | ||
LOK | |0 008 221220||||||||||||||||ger||||||| | ||
LOK | |0 035 |a (DE-Tue135)IxTheo#2022-12-06#3FED9F6B018CA3A47BE45027CC5300BE4AC9D0C4 | ||
LOK | |0 040 |a DE-Tue135 |c DE-627 |d DE-Tue135 | ||
LOK | |0 092 |o n | ||
LOK | |0 852 |a DE-Tue135 | ||
LOK | |0 852 1 |9 00 | ||
LOK | |0 935 |a ixzs |a ixrk |a zota | ||
ORI | |a SA-MARC-ixtheoa001.raw |