Advance consent, critical interests and dementia research

Although advance directives have become a familiar instrument within the context of treatment, there has been minimal support for their expansion into the context of research. In this paper I argue that the principle of precedent autonomy that grants a competent person the right to refuse life-susta...

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Bibliographic Details
Main Author: Buller, Tom (Author)
Format: Electronic Article
Language:English
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Published: BMJ Publ. 2015
In: Journal of medical ethics
Year: 2015, Volume: 41, Issue: 8, Pages: 701-707
Online Access: Volltext (JSTOR)
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520 |a Although advance directives have become a familiar instrument within the context of treatment, there has been minimal support for their expansion into the context of research. In this paper I argue that the principle of precedent autonomy that grants a competent person the right to refuse life-sustaining treatment when later incompetent, also grants a competent person the right to consent to research that is greater than minimal risk. An examination of the principle of precedent autonomy reveals that a future-binding research decision is within the scope of a competent person's critical interests, if the decision is consistent with what the person believes gives her life intrinsic value. 
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