The right to know and genetic testing
This issue of the journal contains three sets of papers clustered around three issues: organs, genetic testing and moral enhancement. Michael Hauskeller has written a guest editorial on the issue of moral enhancement (see page 289) and linked to the Author Meets Critics section of the issue (see pag...
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| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
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| Published: |
BMJ Publ.
2015
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| In: |
Journal of medical ethics
Year: 2015, Volume: 41, Issue: 4, Pages: 287-288 |
| Online Access: |
Volltext (JSTOR) Volltext (kostenfrei) Volltext (kostenfrei) |
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| 520 | |a This issue of the journal contains three sets of papers clustered around three issues: organs, genetic testing and moral enhancement. Michael Hauskeller has written a guest editorial on the issue of moral enhancement (see page 289) and linked to the Author Meets Critics section of the issue (see pages 338-352). In what follows I will make a few remarks on the issue of genetic testing. Two sets of questions occupy the authors writing on genetic testing in this issue. The first of these surrounds the ways in which, in the context of direct to consumer testing (DTC), the autonomy of the patient/consumer is respected, enhanced or undermined. The second issue involves how we think of the value of the genetic test itself: should we care mostly about clinical utility in this context or can a notion of personal utility play a role in the justification and permissibility of genetic testing. Effy Vayena argues that if we use understand autonomy in the way that Joseph Raz has articulated it, we are in a better position to be clear about the acceptability or otherwise of direct to consumer genetic testing (see page 310). She argues that it is important to consider the nature of the options that are provided in the choice and that when we do we can see that it is a mistake only to consider the extent to which these genetic results can be understood to clinically relevant. In her commentary on Vayena's paper, Eline Bunnick suggests that it is unlikely that the broader conception of the options included in the Razian account of autonomy will help in defending the claim that DTC genetic tests promote autonomy (see page 315). Instead, referring to her second paper in this issue, Bunnick claims that the broader personal value of … | ||
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