Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure
Respecting and protecting the confidentiality of data and the privacy of individuals regarding the information that they have given as participants in a research project is a cornerstone of complying with accepted research standards. However, in longitudinal studies, establishing and maintaining pri...
| Authors: | ; ; ; ; ; |
|---|---|
| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
|
| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Published: |
BMJ Publ.
2012
|
| In: |
Journal of medical ethics
Year: 2012, Volume: 38, Issue: 2, Pages: 127-129 |
| Online Access: |
Volltext (JSTOR) Volltext (lizenzpflichtig) Volltext (lizenzpflichtig) |
MARC
| LEADER | 00000caa a22000002 4500 | ||
|---|---|---|---|
| 001 | 1816143022 | ||
| 003 | DE-627 | ||
| 005 | 20230427161303.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 220908s2012 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1136/jme.2011.044552 |2 doi | |
| 035 | |a (DE-627)1816143022 | ||
| 035 | |a (DE-599)KXP1816143022 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rda | ||
| 041 | |a eng | ||
| 084 | |a 1 |2 ssgn | ||
| 100 | 1 | |a Carli, Vladimir |e VerfasserIn |4 aut | |
| 245 | 1 | 0 | |a Maintaining confidentiality in prospective studies: anonymous repeated measurements via email (ARME) procedure |
| 264 | 1 | |c 2012 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 520 | |a Respecting and protecting the confidentiality of data and the privacy of individuals regarding the information that they have given as participants in a research project is a cornerstone of complying with accepted research standards. However, in longitudinal studies, establishing and maintaining privacy is often challenging because of the necessity of repeated contact with participants. A novel internet-based solution is introduced here, which maintains privacy while at the same time ensures linkage of data to individual participants in a repeated measures design. With the use of the anonymous repeated measurements via email (ARME) procedure, two separate one-way communication systems are established through ad hoc email accounts and a secure study website. Strengths and limitations of the approach are discussed. | ||
| 700 | 1 | |a Hadlaczky, Gergö |e VerfasserIn |4 aut | |
| 700 | 1 | |a Wasserman, Camilla |e VerfasserIn |4 aut | |
| 700 | 1 | |a Stingelin-Giles, Nicola |e VerfasserIn |4 aut | |
| 700 | 1 | |a Reiter-Theil, Stella |e VerfasserIn |4 aut | |
| 700 | 1 | |a Wasserman, Danuta |e VerfasserIn |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Journal of medical ethics |d London : BMJ Publ., 1975 |g 38(2012), 2, Seite 127-129 |h Online-Ressource |w (DE-627)323607802 |w (DE-600)2026397-1 |w (DE-576)260773972 |x 1473-4257 |7 nnns |
| 773 | 1 | 8 | |g volume:38 |g year:2012 |g number:2 |g pages:127-129 |
| 856 | |3 Volltext |u http://www.jstor.org/stable/23215415 |x JSTOR | ||
| 856 | 4 | 0 | |u https://doi.org/10.1136/jme.2011.044552 |x Resolving-System |z lizenzpflichtig |3 Volltext |
| 856 | 4 | 0 | |u http://jme.bmj.com/content/38/2/127.abstract |x Verlag |z lizenzpflichtig |3 Volltext |
| 935 | |a mteo | ||
| 951 | |a AR | ||
| ELC | |a 1 | ||
| ITA | |a 1 |t 1 | ||
| LOK | |0 000 xxxxxcx a22 zn 4500 | ||
| LOK | |0 001 418559691X | ||
| LOK | |0 003 DE-627 | ||
| LOK | |0 004 1816143022 | ||
| LOK | |0 005 20220908053547 | ||
| LOK | |0 008 220908||||||||||||||||ger||||||| | ||
| LOK | |0 035 |a (DE-Tue135)IxTheo#2022-08-03#0EDE3C521528CC52DA59F41E4212DED63FB93561 | ||
| LOK | |0 040 |a DE-Tue135 |c DE-627 |d DE-Tue135 | ||
| LOK | |0 092 |o n | ||
| LOK | |0 852 |a DE-Tue135 | ||
| LOK | |0 852 1 |9 00 | ||
| LOK | |0 866 |x JSTOR#http://www.jstor.org/stable/23215415 | ||
| LOK | |0 935 |a ixzs |a ixrk |a zota | ||
| OAS | |a 1 |b inherited from superior work | ||
| ORI | |a SA-MARC-ixtheoa001.raw | ||