Ethical issues related to computerised family medical histories in sickle cell disease: Inforare

The Inforare project aims to set up a system for the sharing of clinical and familial data, in order to study how genes are related to the severity of sickle cell disease. While the computerisation of clinical records represents a valuable research goal, an ethical framework is necessary to guarante...

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Autori: Franrenet, Sandra (Autore) ; Duchange, Nathalie (Autore) ; Galactéros, Fréderic (Autore) ; Quantin, Catherine (Autore) ; Cohen, Olivier (Autore) ; Nzouakou, Ruben (Autore) ; Sudraud, Sophie (Autore) ; Hervé, Christian (Autore) ; Moutel, Grégoire (Autore)
Tipo di documento: Elettronico Articolo
Lingua:Inglese
Verificare la disponibilità: HBZ Gateway
Interlibrary Loan:Interlibrary Loan for the Fachinformationsdienste (Specialized Information Services in Germany)
Pubblicazione: 2010
In: Journal of medical ethics
Anno: 2010, Volume: 36, Fascicolo: 10, Pagine: 604-607
Accesso online: Volltext (JSTOR)
Volltext (lizenzpflichtig)
Volltext (lizenzpflichtig)

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