Non-completion and informed consent
There is a good deal of biomedical research that does not produce scientifically useful data because it fails to recruit a sufficient number of subjects. This fact is typically not disclosed to prospective subjects. In general, the guidance about consent concerns the information required to make int...
Main Author: | |
---|---|
Format: | Electronic Article |
Language: | English |
Check availability: | HBZ Gateway |
Journals Online & Print: | |
Fernleihe: | Fernleihe für die Fachinformationsdienste |
Published: |
BMJ Publ.
2014
|
In: |
Journal of medical ethics
Year: 2014, Volume: 40, Issue: 2, Pages: 127-130 |
Online Access: |
Volltext (JSTOR) Volltext (lizenzpflichtig) Volltext (lizenzpflichtig) |
MARC
LEADER | 00000naa a22000002 4500 | ||
---|---|---|---|
001 | 1816102350 | ||
003 | DE-627 | ||
005 | 20220908053108.0 | ||
007 | cr uuu---uuuuu | ||
008 | 220908s2014 xx |||||o 00| ||eng c | ||
024 | 7 | |a 10.1136/medethics-2012-101108 |2 doi | |
035 | |a (DE-627)1816102350 | ||
035 | |a (DE-599)KXP1816102350 | ||
040 | |a DE-627 |b ger |c DE-627 |e rda | ||
041 | |a eng | ||
084 | |a 1 |2 ssgn | ||
100 | 1 | |a Wertheimer, Alan |e VerfasserIn |4 aut | |
245 | 1 | 0 | |a Non-completion and informed consent |
264 | 1 | |c 2014 | |
336 | |a Text |b txt |2 rdacontent | ||
337 | |a Computermedien |b c |2 rdamedia | ||
338 | |a Online-Ressource |b cr |2 rdacarrier | ||
520 | |a There is a good deal of biomedical research that does not produce scientifically useful data because it fails to recruit a sufficient number of subjects. This fact is typically not disclosed to prospective subjects. In general, the guidance about consent concerns the information required to make intelligent self-interested decisions and ignores some of the information required for intelligent altruistic decisions. Bioethics has worried about the ‘therapeutic misconception’, but has ignored the ‘completion misconception’. This article argues that, other things being equal, prospective subjects should be informed about the possibility of non-completion as part of the standard consent process if (1) it is or should be anticipatable that there is a non-trivial possibility of non-completion and (2) that information is likely to be relevant to a prospective subject's decision to consent. The article then considers several objections to the argument, including the objection that disclosing non-completion information would make recruitment even more difficult. | ||
773 | 0 | 8 | |i Enthalten in |t Journal of medical ethics |d London : BMJ Publ., 1975 |g 40(2014), 2, Seite 127-130 |h Online-Ressource |w (DE-627)323607802 |w (DE-600)2026397-1 |w (DE-576)260773972 |x 1473-4257 |7 nnns |
773 | 1 | 8 | |g volume:40 |g year:2014 |g number:2 |g pages:127-130 |
856 | |3 Volltext |u http://www.jstor.org/stable/43282935 |x JSTOR | ||
856 | 4 | 0 | |u https://doi.org/10.1136/medethics-2012-101108 |x Resolving-System |z lizenzpflichtig |3 Volltext |
856 | 4 | 0 | |u http://jme.bmj.com/content/40/2/127.abstract |x Verlag |z lizenzpflichtig |3 Volltext |
935 | |a mteo | ||
951 | |a AR | ||
ELC | |a 1 | ||
ITA | |a 1 |t 1 | ||
LOK | |0 000 xxxxxcx a22 zn 4500 | ||
LOK | |0 001 418555415X | ||
LOK | |0 003 DE-627 | ||
LOK | |0 004 1816102350 | ||
LOK | |0 005 20220908053108 | ||
LOK | |0 008 220908||||||||||||||||ger||||||| | ||
LOK | |0 035 |a (DE-Tue135)IxTheo#2022-08-03#0E8DB7BB6FD4D2924B0E2FCD9CF6ADA2E2D51605 | ||
LOK | |0 040 |a DE-Tue135 |c DE-627 |d DE-Tue135 | ||
LOK | |0 092 |o n | ||
LOK | |0 852 |a DE-Tue135 | ||
LOK | |0 852 1 |9 00 | ||
LOK | |0 866 |x JSTOR#http://www.jstor.org/stable/43282935 | ||
LOK | |0 935 |a ixzs |a ixrk |a zota | ||
OAS | |a 1 |b inherited from superior work | ||
ORI | |a SA-MARC-ixtheoa001.raw |