TRUSTED CONSENT AND RESEARCH BIOBANKS: TOWARDS A ‘NEW ALLIANCE’ BETWEEN RESEARCHERS AND DONORS

We argue that, in the case of research biobanks, there is a need to replace the currently used informed consent with trusted consent. Accordingly, we introduce a proposal for the structure of the latter. Further, we discuss some of the issues that can be addressed effectively through our proposal. I...

Full description

Saved in:  
Bibliographic Details
Authors: Boniolo, Giovanni (Author) ; Fiore, Pier Paolo Di (Author) ; Pece, Salvatore (Author)
Format: Electronic Article
Language:English
Check availability: HBZ Gateway
Journals Online & Print:
Drawer...
Fernleihe:Fernleihe für die Fachinformationsdienste
Published: Wiley-Blackwell 2012
In: Bioethics
Year: 2012, Volume: 26, Issue: 2, Pages: 93-100
Further subjects:B new alliance
B Consent
B Biobank
B Trust
Online Access: Volltext (lizenzpflichtig)
Volltext (lizenzpflichtig)

MARC

LEADER 00000naa a22000002 4500
001 1781883602
003 DE-627
005 20211211042812.0
007 cr uuu---uuuuu
008 211211s2012 xx |||||o 00| ||eng c
024 7 |a 10.1111/j.1467-8519.2010.01823.x  |2 doi 
035 |a (DE-627)1781883602 
035 |a (DE-599)KXP1781883602 
040 |a DE-627  |b ger  |c DE-627  |e rda 
041 |a eng 
084 |a 1  |2 ssgn 
100 1 |a Boniolo, Giovanni  |e VerfasserIn  |4 aut 
245 1 0 |a TRUSTED CONSENT AND RESEARCH BIOBANKS: TOWARDS A ‘NEW ALLIANCE’ BETWEEN RESEARCHERS AND DONORS 
264 1 |c 2012 
336 |a Text  |b txt  |2 rdacontent 
337 |a Computermedien  |b c  |2 rdamedia 
338 |a Online-Ressource  |b cr  |2 rdacarrier 
520 |a We argue that, in the case of research biobanks, there is a need to replace the currently used informed consent with trusted consent. Accordingly, we introduce a proposal for the structure of the latter. Further, we discuss some of the issues that can be addressed effectively through our proposal. In particular, we illustrate: i) which research should be authorized by donors; ii) how to regulate access to information; iii) the fundamental role played by a Third Party Authority in assuring compliance with the reciprocal expectations and obligations of donors and scientists. Finally, we briefly analyse two issues that might represent important elements of a ‘new alliance’ between researchers and donors to which the trusted consent could pave the way: i) the correlations between needs and rights of the two parties, and ii) possible economic transactions. 
601 |a Biobank 
650 4 |a new alliance 
650 4 |a Trust 
650 4 |a Consent 
650 4 |a Biobank 
700 1 |a Fiore, Pier Paolo Di  |e VerfasserIn  |4 aut 
700 1 |a Pece, Salvatore  |e VerfasserIn  |4 aut 
773 0 8 |i Enthalten in  |t Bioethics  |d Oxford [u.a.] : Wiley-Blackwell, 1987  |g 26(2012), 2, Seite 93-100  |h Online-Ressource  |w (DE-627)271596708  |w (DE-600)1480658-7  |w (DE-576)078707986  |x 1467-8519  |7 nnns 
773 1 8 |g volume:26  |g year:2012  |g number:2  |g pages:93-100 
856 4 0 |u https://doi.org/10.1111/j.1467-8519.2010.01823.x  |x Resolving-System  |z lizenzpflichtig  |3 Volltext 
856 4 0 |u https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1467-8519.2010.01823.x  |x Verlag  |z lizenzpflichtig  |3 Volltext 
935 |a mteo 
936 u w |d 26  |j 2012  |e 2  |h 93-100 
951 |a AR 
ELC |a 1 
ITA |a 1  |t 1 
LOK |0 000 xxxxxcx a22 zn 4500 
LOK |0 001 401900658X 
LOK |0 003 DE-627 
LOK |0 004 1781883602 
LOK |0 005 20211211042812 
LOK |0 008 211211||||||||||||||||ger||||||| 
LOK |0 035   |a (DE-Tue135)IxTheo#2021-12-10#C726E16797A15088540CB9A1E460E36F16E87D85 
LOK |0 040   |a DE-Tue135  |c DE-627  |d DE-Tue135 
LOK |0 092   |o n 
LOK |0 852   |a DE-Tue135 
LOK |0 852 1  |9 00 
LOK |0 935   |a ixzs  |a ixrk  |a zota 
ORI |a SA-MARC-ixtheoa001.raw 
STA 0 0 |a Biobank,Trust 
STB 0 0 |a Biobanque,Trust 
STC 0 0 |a Banco de biomaterial,Trust 
STD 0 0 |a Biobanca,Trust 
STF 0 0 |a 托拉斯 
STG 0 0 |a Banco de biomaterial,Trust 
STH 0 0 |a Trust,Траст,Биобанк 
STI 0 0 |a Βιοτράπεζα,Τραστ,Trust,Εμπίστευμα 
SYE 0 0 |a Biomaterialbank