RT Article
T1 BIOETHICS AND DEMOCRACY: COMPETING ROLES OF NATIONAL BIOETHICS ORGANISATIONS
JF Bioethics
VO 20
IS 6
SP 326
OP 338
A1 Dodds, Susan
A1 Thomson, Colin
A2 Thomson, Colin
LA English
YR 2006
UL https://ixtheo.de/Record/1781880093
AB In establishing National Bioethics Organisations (NBOs), liberal democracies seek to acknowledge the diversity of strongly held ethical positions and the imperative to engage in public debate about important bioethical decisions. NBOs are typically given a range of responsibilities, including contributing to and stimulating public debate; providing expert opinion on relevant issues for policy deliberations; and developing public policy. The state is now found to have an interest in areas previously thought to be a matter of individual choice. NBOs can provide one way of opening up public debate to allow the diversity of views to be heard in a manner that is well-informed, articulate and responsive to both expert and ‘lay’ public views. We draw on debates in political theory about democratic decision-making and on the policy making roles of some key NBOs. We are particularly interested in examining the capacity of NBOs to meet the democratic ideal of effective participation by the public, or citizenry, especially by those who are directly affected by the policies, in the development of effective public policy. We provide a basic framework for policy development involving NBOs that can begin to meet this ideal, a process of ‘contested deliberation’.
K1 democracy and pluralism
K1 health and medical research policy
K1 bioethics policy
K1 national bioethics organisations
DO 10.1111/j.1467-8519.2006.00511.x