Ethical aspects of undergoing a predictive genetic testing for Huntington's disease
The aim of this study was to describe the experiences of undergoing a presymptomatic genetic test for the hereditary and fatal Huntington’s disease, using a case study approach. The study was based on 18 interviews with a young woman and her husband from the decision to undergo the test, to receivin...
| Authors: | ; ; ; ; |
|---|---|
| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
|
| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Published: |
Sage
2013
|
| In: |
Nursing ethics
Year: 2013, Volume: 20, Issue: 2, Pages: 189-199 |
| Further subjects: | B
Case study
B Ethics B Support B presymptomatic genetic test B Huntington’s disease B Life History |
| Online Access: |
Volltext (lizenzpflichtig) |
MARC
| LEADER | 00000caa a22000002 4500 | ||
|---|---|---|---|
| 001 | 1779451075 | ||
| 003 | DE-627 | ||
| 005 | 20230426132948.0 | ||
| 007 | cr uuu---uuuuu | ||
| 008 | 211126s2013 xx |||||o 00| ||eng c | ||
| 024 | 7 | |a 10.1177/0969733012452686 |2 doi | |
| 035 | |a (DE-627)1779451075 | ||
| 035 | |a (DE-599)KXP1779451075 | ||
| 040 | |a DE-627 |b ger |c DE-627 |e rda | ||
| 041 | |a eng | ||
| 084 | |a 1 |2 ssgn | ||
| 100 | 1 | |a Andersson, Petra Lilja |e VerfasserIn |4 aut | |
| 245 | 1 | 0 | |a Ethical aspects of undergoing a predictive genetic testing for Huntington's disease |
| 264 | 1 | |c 2013 | |
| 336 | |a Text |b txt |2 rdacontent | ||
| 337 | |a Computermedien |b c |2 rdamedia | ||
| 338 | |a Online-Ressource |b cr |2 rdacarrier | ||
| 520 | |a The aim of this study was to describe the experiences of undergoing a presymptomatic genetic test for the hereditary and fatal Huntington’s disease, using a case study approach. The study was based on 18 interviews with a young woman and her husband from the decision to undergo the test, to receiving the results and trying to adapt to them, which were analysed using a life history approach. The findings show that the process of undergoing a presymptomatic test involves several closely connected ethical and medical questions, such as the reason for the test, the consequences of the test results and how health-care services can be developed to support people in this situation. | ||
| 650 | 4 | |a Support | |
| 650 | 4 | |a presymptomatic genetic test | |
| 650 | 4 | |a Life History | |
| 650 | 4 | |a Huntington’s disease | |
| 650 | 4 | |a Ethics | |
| 650 | 4 | |a Case study | |
| 700 | 1 | |a Juth, Niklas |e VerfasserIn |4 aut | |
| 700 | 1 | |a Petersén, Åsa |e VerfasserIn |4 aut | |
| 700 | 1 | |a Graff, Caroline |e VerfasserIn |4 aut | |
| 700 | 1 | |a Edberg, Anna-Karin |e VerfasserIn |4 aut | |
| 773 | 0 | 8 | |i Enthalten in |t Nursing ethics |d London [u.a.] : Sage, 1994 |g 20(2013), 2, Seite 189-199 |h Online-Ressource |w (DE-627)324869460 |w (DE-600)2031461-9 |w (DE-576)273866605 |x 1477-0989 |7 nnns |
| 773 | 1 | 8 | |g volume:20 |g year:2013 |g number:2 |g pages:189-199 |
| 856 | 4 | 0 | |u https://doi.org/10.1177/0969733012452686 |x Resolving-System |z lizenzpflichtig |3 Volltext |
| 935 | |a mteo | ||
| 951 | |a AR | ||
| ELC | |a 1 | ||
| ITA | |a 1 |t 1 | ||
| LOK | |0 000 xxxxxcx a22 zn 4500 | ||
| LOK | |0 001 4008124950 | ||
| LOK | |0 003 DE-627 | ||
| LOK | |0 004 1779451075 | ||
| LOK | |0 005 20211126113433 | ||
| LOK | |0 008 211126||||||||||||||||ger||||||| | ||
| LOK | |0 035 |a (DE-Tue135)IxTheo#2021-10-24#3B612ED19214EDC0D080E2F460FFEC0EC21E5FDF | ||
| LOK | |0 040 |a DE-Tue135 |c DE-627 |d DE-Tue135 | ||
| LOK | |0 092 |o n | ||
| LOK | |0 852 |a DE-Tue135 | ||
| LOK | |0 852 1 |9 00 | ||
| LOK | |0 935 |a ixzs |a ixrk |a zota | ||
| ORI | |a SA-MARC-ixtheoa001.raw | ||