Working with Children in End-of-Life Decision Making

Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this i...

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Bibliographic Details
Authors: Whitty-Rogers, Joanne (Author) ; Alex, Marion (Author) ; MacDonald, Cathy (Author) ; Pierrynowski Gallant, Donna (Author) ; Austin, Wendy (Author)
Format: Electronic Article
Language:English
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Published: Sage 2009
In: Nursing ethics
Year: 2009, Volume: 16, Issue: 6, Pages: 743-758
Further subjects:B children’s autonomy
B nurses’ role
B best interests
B relational ethics
B end-of-life care
Online Access: Volltext (lizenzpflichtig)
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Summary:Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this is happening is however blurred by lack of clarity about what children — of diverse levels of cognitive development — are capable of understanding. Moreover, when there are multiple surrogate decision makers, parental and professional conflict can arise concerning children’s ‘best interest’. Giving children a voice and offering choice promotes their dignity and quality of life. Nevertheless, it also presents with many challenges. Case studies using pseudonyms and changed situational identities are used in this article to illuminate the complexity of ethical challenges facing nurses in end-of-life care with children and families.
ISSN:1477-0989
Contains:Enthalten in: Nursing ethics
Persistent identifiers:DOI: 10.1177/0969733009341910