The Human Connection: A Case Study of Spirituality and Disability

This paper utilizes a case study of a woman in the final stage of Frederick's Ataxia, who, together with her carer, participated in an interview just days before she died. As a consequence of impairment associated with the later stage of the disease, the participant's verbal communication...

Full description

Saved in:  
Bibliographic Details
Authors: MacGrath, Pam (Author) ; Newell, Christopher 1964-2008 (Author)
Format: Electronic Article
Language:English
Check availability: HBZ Gateway
Journals Online & Print:
Drawer...
Fernleihe:Fernleihe für die Fachinformationsdienste
Published: Routledge 2004
In: Journal of religion, disability & health
Year: 2004, Volume: 8, Issue: 1/2, Pages: 89-103
Further subjects:B Disability
B Spirituality
B Chronic Illness
B Palliative Care
Online Access: Volltext (lizenzpflichtig)

MARC

LEADER 00000caa a22000002 4500
001 1765263611
003 DE-627
005 20230427153457.0
007 cr uuu---uuuuu
008 210802s2004 xx |||||o 00| ||eng c
024 7 |a 10.1300/J095v08n01_07  |2 doi 
035 |a (DE-627)1765263611 
035 |a (DE-599)KXP1765263611 
040 |a DE-627  |b ger  |c DE-627  |e rda 
041 |a eng 
084 |a 0  |2 ssgn 
100 1 |e VerfasserIn  |0 (DE-588)1068382937  |0 (DE-627)820218561  |0 (DE-576)188583726  |4 aut  |a MacGrath, Pam 
109 |a MacGrath, Pam  |a McGrath, Pam 
245 1 4 |a The Human Connection  |b A Case Study of Spirituality and Disability 
264 1 |c 2004 
336 |a Text  |b txt  |2 rdacontent 
337 |a Computermedien  |b c  |2 rdamedia 
338 |a Online-Ressource  |b cr  |2 rdacarrier 
520 |a This paper utilizes a case study of a woman in the final stage of Frederick's Ataxia, who, together with her carer, participated in an interview just days before she died. As a consequence of impairment associated with the later stage of the disease, the participant's verbal communication was limited. There are various ways in which individuals who are confronting the end of life experience spirituality. For this woman, spirituality was expressed as a connection with significant others, rather than as religiosity. Key findings are expressed in terms of the importance of insights offered by people with non-verbal communication, spirituality rather than religiousness, and the importance of domiciliary palliative care. The most important gift that pastoral carers, and carers in general, have to offer is the gift of relationship. 
650 4 |a Spirituality 
650 4 |a Chronic Illness 
650 4 |a Disability 
650 4 |a Palliative Care 
700 1 |e VerfasserIn  |0 (DE-588)1056880147  |0 (DE-627)794167780  |0 (DE-576)184604168  |4 aut  |a Newell, Christopher  |d 1964-2008 
773 0 8 |i Enthalten in  |t Journal of religion, disability & health  |d [S.l.] : Routledge, 1999  |g 8(2004), 1/2, Seite 89-103  |h Online-Ressource  |w (DE-627)366026801  |w (DE-600)2112749-9  |w (DE-576)105935026  |x 1522-9122  |7 nnns 
773 1 8 |g volume:8  |g year:2004  |g number:1/2  |g pages:89-103 
856 4 0 |u https://doi.org/10.1300/J095v08n01_07  |x Resolving-System  |z lizenzpflichtig  |3 Volltext 
936 u w |d 8  |j 2004  |e 1/2  |h 89-103 
951 |a AR 
ELC |a 1 
ITA |a 1  |t 1 
LOK |0 000 xxxxxcx a22 zn 4500 
LOK |0 001 3959213042 
LOK |0 003 DE-627 
LOK |0 004 1765263611 
LOK |0 005 20210802171856 
LOK |0 008 210802||||||||||||||||ger||||||| 
LOK |0 040   |a DE-Tue135  |c DE-627  |d DE-Tue135 
LOK |0 092   |o n 
LOK |0 852   |a DE-Tue135 
LOK |0 852 1  |9 00 
LOK |0 935   |a ixzs  |a ixzo  |a rwrk 
ORI |a SA-MARC-ixtheoa001.raw 
REL |a 1 
SUB |a REL