Thinking about the idea of consent in data science genomics: How ‘informed’ is it?
In this paper we argue that ‘informed’ consent in Big Data genomic biobanking is frequently less than optimally informative. This is due to the particular features of genomic biobanking research which render it ethically problematic. We discuss these features together with details of consent models...
| Authors: | ; |
|---|---|
| Format: | Electronic Article |
| Language: | English |
| Check availability: | HBZ Gateway |
| Journals Online & Print: | Drawer...
|
| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Published: |
Wiley-Blackwell
2021
|
| In: |
Nursing philosophy
Year: 2021, Volume: 22, Issue: 3 |
| Further subjects: | B
Nursing Ethics
B Informed Consent B Concepts B human communication B Big Data genomic biobanking |
| Online Access: |
Volltext (lizenzpflichtig) Volltext (lizenzpflichtig) |