RT Article
T1 Navigating conflicts of justice in the use of race and ethnicity in precision medicine
JF Bioethics
VO 34
IS 8
SP 849
OP 856
A1 Schaefer, G. Owen
A1 Sun, Shirley Hsiao-Li
A1 Tai, E. Shyong
A2 Sun, Shirley Hsiao-Li
A2 Tai, E. Shyong
LA English
YR 2020
UL https://ixtheo.de/Record/1735929433
AB Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scientific value or privacy, there are also tensions between different aspects of justice. This paper focuses on three particular aspects of justice relevant to this precision medicine: social justice, distributive justice and human rights. We describe the implications of each for the use of race and ethnicity in precision medicine, and also how they intersect and potentially conflict with each another. By attending to these intersections, we aim to enrich and add nuance to debates over how best to proceed with precision medicine initiatives.
K1 Distributive Justice
K1 human rights justice
K1 precision medicine
K1 Social Justice
DO 10.1111/bioe.12757