Rethinking counselling in prenatal screening: An ethical analysis of informed consent in the context of non-invasive prenatal testing (NIPT)
Informed consent is a key condition for prenatal screening programmes to reach their aim of promoting reproductive autonomy. Reaching this aim is currently being challenged with the introduction of non-invasive prenatal testing (NIPT) in first-trimester prenatal screening programmes: amongst others...
| Publicado no: | Bioethics |
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| Authors: | ; ; ; |
| Tipo de documento: | Recurso Electrónico Artigo |
| Idioma: | Inglês |
| Verificar disponibilidade: | HBZ Gateway |
| Journals Online & Print: | Carregar...
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| Fernleihe: | Fernleihe für die Fachinformationsdienste |
| Publicado em: |
Wiley-Blackwell
[2020]
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| Em: |
Bioethics
Ano: 2020, Volume: 34, Número: 7, Páginas: 671-678 |
| Classificações IxTheo: | NCH Ética da medicina |
| Outras palavras-chave: | B
Informed Consent
B reproductive autonomy B non-invasive prenatal test B stepwise counselling model B Informed Choice B prenatal screening B Counselling |
| Acesso em linha: |
Volltext (Verlag) Volltext (doi) |
| Resumo: | Informed consent is a key condition for prenatal screening programmes to reach their aim of promoting reproductive autonomy. Reaching this aim is currently being challenged with the introduction of non-invasive prenatal testing (NIPT) in first-trimester prenatal screening programmes: amongst others its procedural ease—it only requires a blood draw and reaches high levels of reliability—might hinder women’s understanding that they should make a personal, informed decision about screening. We offer arguments for a renewed recognition and use of informed consent compared to informed choice, and for a focus on value-consistent choices and personalized informational preferences. We argue for a three-step counselling model in which three decision moments are distinguished and differently addressed: (1) professionals explore women’s values concerning whether and why they wish to know whether their baby has a genetic disorder; (2) women receive layered medical-technical information and are asked to make a decision about screening; (3) during post-test counselling, women are supported in decision-making about the continuation or termination of their pregnancy. This model might also be applicable in other fields of genetic (pre-test) counselling, where techniques for expanding genome analysis and burdensome test-outcomes challenge counselling of patients. |
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| ISSN: | 1467-8519 |
| Obras secundárias: | Enthalten in: Bioethics
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| Persistent identifiers: | DOI: 10.1111/bioe.12760 |