RT Article
T1 Rethinking patient involvement in healthcare priority setting
JF Bioethics
VO 34
IS 4
SP 403
OP 411
A1 Sandman, Lars
A2 Bognar, Greg
A2 Hofmann, Björn Bastian 1992-
LA English
YR 2020
UL https://ixtheo.de/Record/1727462904
AB With healthcare systems under pressure from scarcity of resources and ever-increasing demand for services, difficult priority setting choices need to be made. At the same time, increased attention to patient involvement in a wide range of settings has given rise to the idea that those who are eventually affected by priority setting decisions should have a say in those decisions. In this paper, we investigate arguments for the inclusion of patient representatives in priority setting bodies at the policy level. We find that the standard justifications for patient representation, such as to achieve patient-relevant decisions, empowerment of patients, securing legitimacy of decisions, and the analogy with democracy, all fall short of supporting patient representation in this context. We conclude by briefly outlining an alternative proposal for patient participation that involves patient consultants.
K1 Deliberative Democracy
K1 Empowerment
K1 Legitimacy
K1 patient involvement
K1 priority setting
K1 Rationing
DO 10.1111/bioe.12730