Drugs, genes and screens: The ethics of preventing and treating spinal muscular atrophy

Spinal muscular atrophy (SMA) is the most common genetic disease that causes infant mortality. Its treatment and prevention represent the paradigmatic example of the ethical dilemmas of 21st-century medicine. New therapies (nusinersen and AVXS-101) hold the promise of being able to treat, but not cu...

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Bibliographic Details
Authors: Gyngell, Christopher (Author) ; Savulescu, Julian 1963- (Author) ; Stark, Zornitza (Author)
Format: Electronic Article
Language:English
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Published: Wiley-Blackwell [2020]
In: Bioethics
Year: 2020, Volume: 34, Issue: 5, Pages: 493-501
IxTheo Classification:NCH Medical ethics
Further subjects:B Ethics
B treatment versus prevention
B pre-conception screening
B spinal muscular atrophy
B disability screening
Online Access: Presumably Free Access
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